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About Tackle Rare Disease
February 28th is
Rare Disease Day and on this day the hope is to raise awareness and generate
change for the 300 million people worldwide living with a rare disease, their
families and caregivers.
Don’t Forget Morgan: Don’t Forget Morgan was formed to raise
funding and awareness for a rare disease called BPAN. BPAN impacts about
500 people in the world and there is no cure or therapy to help with
symptoms. Our ultimate goal is to raise money to fund researchers to find
a cure and a therapy for kids with BPAN.
Learn More: https://www.dontforgetmorgan.org/
Team HEARTest Yard: The mission of The HEARTest Yard is to support families of children with congenital heart disease in the Carolinas.
The HEARTest Yard, established in 2013, is the first and only family support
and service program for pediatric cardiovascular patients and their families in
the Carolinas.
The HEARTest Yard, a program under Receptions for Research: The Greg Olsen
Foundation, supports families of children with congenital heart disease with
in-home nursing care and comprehensive medical services at The HEARTest Yard
Congenital Heart Center.
To learn more about the Greg Olsen Foundation and The HEARTest Yard, visit their website at www.r4r.org.
