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About Tackle Rare Disease

February 28th is Rare Disease Day and on this day the hope is to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families and caregivers.

Don’t Forget Morgan:  Don’t Forget Morgan was formed to raise funding and awareness for a rare disease called BPAN.  BPAN impacts about 500 people in the world and there is no cure or therapy to help with symptoms.  Our ultimate goal is to raise money to fund researchers to find a cure and a therapy for kids with BPAN.

Learn More: https://www.dontforgetmorgan.org/ 

 

Team HEARTest Yard: The mission of The HEARTest Yard is to support families of children with congenital heart disease in the Carolinas.

The HEARTest Yard, established in 2013, is the first and only family support and service program for pediatric cardiovascular patients and their families in the Carolinas.
The HEARTest Yard, a program under Receptions for Research: The Greg Olsen Foundation, supports families of children with congenital heart disease with in-home nursing care and comprehensive medical services at The HEARTest Yard Congenital Heart Center.

To learn more about the Greg Olsen Foundation and The HEARTest Yard, visit their website at
www.r4r.org.

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